We have secured a block of rooms at a reasonable rate. RRP will also reimburse up to $300 toward travel and lodging for the individual with RUNX1-FPD and for one close family member. Email kkorgan@runx1-fpd.org to reserve a room.
RUNX1-FPD Patient Regional Meeting
Hosted byRUNX1 Research Program
Kindly RSVP by Thursday, May 16.
Date
Thursday, July 18
3:30PM – 7:00PM CDT
Agenda
3:30–4:05 PM
Welcome
with snacks & refreshments
Amanda Eggen, PhD
4:05–5:00 PM
Local Clinical Care and Research Opportunities + Q&A
Courtney DiNardo, MD
Alison Bertuch, MD, PhD
Hannah Helber, MS, CGC
5:00–5:30 PM
Patient Wellbeing Session
TBD
5:30–6:00 PM
Mobilizing our Community for RUNX1
Ways to Support RRP’s Mission
Alex GonzalezÂ
6:00–7:00 PM
Networking Dinner and Wrap-Up
Amanda Eggen, PhD
Details
Please RSVP no later than Thursday, May 16.
RRP will offer refreshments and dinner on site, planned at III by Wolfgang Puck. RRP will also reimburse up to $300 toward travel and lodging for the individual with RUNX1-FPD and for one close family member.
Note that we have scheduled this on Thursday, July 18, in case individuals would like to schedule a routine appointment with one of the RUNX1 physicians at MD Anderson or Texas Children's while in the area.
Email Amanda with questions: aeggen@runx1-fpd.org